Survey to Determine Incarcerated Persons' Views on Surrogate Decision Making

What this study involves

The registry says this study is recruiting. Individual locations may have different availability.

Study type

Observational

Phase

Not applicable / not listed

Age range

18 years - 120 years

Sex eligible

All sexes

Healthy volunteers

Accepted

Participants

75000 Estimated

These are starting points, not an eligibility decision. The research team must review the full requirements.

About the research

Background:

About 180,000 of the people in US prisons are over 55 years old. Aging people often cannot make medical decisions on their own. People who cannot make their own decisions must rely on a "surrogate." A surrogate is someone who helps the person's doctor make decisions for them. Researchers want to conduct a survey to ask people in prison who they would like to be their surrogates. But first, they need to find out if their survey questions are clear and easy to understand.

Objective:

To get imprisoned people's feedback on survey questions about surrogate decision making.

Eligibility:

People currently imprisoned in a US facility with access to Edovo. They must be able to read and write in English.

Design:

Participants will answer 26 survey questions. The questions will be on the Edovo Learn software platform. After each question, they will be asked: "Was this question clear? If not, please explain in the box below what you found unclear. Also, if you have any suggestions for how we might make the question clearer, please include them."

Participants will be asked to imagine themselves in a situation where they cannot make their own medical decisions. They may skip questions or stop the survey if they want. No information that identifies them will be collected.

The survey will take about 15 minutes.

Who may be able to participate?

The list below is the sponsor’s full registry wording. It can include conditions, prior treatment, test results and other requirements. A match in search does not mean you qualify.

• INCLUSION CRITERIA:

In order to be eligible to participate in this study, an individual must meet all of the following criteria:

1. Currently incarcerated in a United States facility with Edovo educational tablets
2. Ability to understand the consent form and survey
3. Willingness to give informed consent

EXCLUSION CRITERIA:

An individual who meets any of the following criteria will be excluded from participation in this study:

1\. Inability to read or write in English

Study population

Adults who are currently incarcerated in the United States

Treatment, groups and participation

The registry may describe treatments and study duration without a complete visit calendar. Ask the study team for the exact schedule, procedures, risks, costs and alternatives. Keep your usual care plan unless your treating clinician tells you otherwise.

Assignment

Not reported

Masking

Not reported

What researchers are measuring

Outcome measures describe what is being studied. They are not proof that a treatment works.

Primary measures

Research locations (1)

The overall study status and a local site’s status can differ. Confirm that location’s availability before traveling.

1 locations

Study team and timeline

Lead sponsor

National Institutes of Health Clinical Center (CC)

Study start

Nov 15, 2026 Estimated

Primary completion

Dec 29, 2026 Estimated

Study completion

Feb 28, 2027 Estimated

First posted

Aug 7, 2026 Actual

Last updated

Nov 10, 2026 Actual

Official study contacts