Survey to Determine Incarcerated Persons' Views on Surrogate Decision Making
Healthy Volunteers
De qué trata este estudio
El registro indica que este estudio recluta participantes. La disponibilidad puede variar por centro.
- Tipo de estudio
- Observacional
- Fase
- No aplica / no indicada
- Rango de edad
- 18 años - 120 años
- Sexo admitido
- Todos los sexos
- Voluntarios sanos
- Aceptados
- Participantes
- 75000 Estimado
Estos son puntos de partida, no una decisión de elegibilidad. El equipo debe revisar todos los requisitos.
Las explicaciones y la navegación están en español. Los textos proporcionados por el registro, incluidos títulos, resúmenes y criterios, se conservan en su idioma original. Puedes pedir orientación en español a WCR.
Acerca de la investigación
Background:
About 180,000 of the people in US prisons are over 55 years old. Aging people often cannot make medical decisions on their own. People who cannot make their own decisions must rely on a "surrogate." A surrogate is someone who helps the person's doctor make decisions for them. Researchers want to conduct a survey to ask people in prison who they would like to be their surrogates. But first, they need to find out if their survey questions are clear and easy to understand.
Objective:
To get imprisoned people's feedback on survey questions about surrogate decision making.
Eligibility:
People currently imprisoned in a US facility with access to Edovo. They must be able to read and write in English.
Design:
Participants will answer 26 survey questions. The questions will be on the Edovo Learn software platform. After each question, they will be asked: "Was this question clear? If not, please explain in the box below what you found unclear. Also, if you have any suggestions for how we might make the question clearer, please include them."
Participants will be asked to imagine themselves in a situation where they cannot make their own medical decisions. They may skip questions or stop the survey if they want. No information that identifies them will be collected.
The survey will take about 15 minutes.
Leer la descripción completa
Study Description:
Currently, different states have different practices for surrogate decision-making for incarcerated persons who are not able to make their own decisions. These differences raise the challenge of determining which approach or approaches are the best. To address this issue, our research team has developed a questionnaire for incarcerated persons. This questionnaire will be integrated into a software application known as Edovo (https://www.edovo.org/), which is tailored for use in correctional facilities. This research aims to gather incarcerated persons" preferences related to surrogate decision-making. The study team hopes to identify best practices that could inform practices and policies across states, ultimately enhancing the support provided to this vulnerable population.
Objectives:
Primary Objective:
Explore incarcerated persons' views regarding surrogate decision-making if they become unable to make their own medical decisions.
Endpoints:
Primary Endpoints:
1. Describe incarcerated persons' preferences for surrogate decisionmakers if they become unable to make their own medical decisions.
2. The proportion of incarcerated persons who endorse the use of a patient preference predictor (PPP) for surrogate decision-making if they become unable to make their own medical decisions.
Secondary Endpoint:
The discrepancy between incarcerated persons who endorse the use of a PPP in general, but not for their own treatment.
¿Quién podría participar?
La lista siguiente contiene el texto del patrocinador. Puede incluir condiciones, tratamientos previos, resultados de pruebas y otros requisitos. Aparecer en tu búsqueda no significa que califiques.
- INCLUSION CRITERIA:
In order to be eligible to participate in this study, an individual must meet all of the following criteria:
1. Currently incarcerated in a United States facility with Edovo educational tablets
2. Ability to understand the consent form and survey
3. Willingness to give informed consent
EXCLUSION CRITERIA:
An individual who meets any of the following criteria will be excluded from participation in this study:
1\. Inability to read or write in English
Población del estudio
Adults who are currently incarcerated in the United States
Entiende la evaluación inicialTratamiento, grupos y participación
El registro puede describir tratamientos y duración sin incluir un calendario completo. Pide al equipo las visitas, procedimientos, riesgos, costos y alternativas. Mantén tu atención habitual salvo que tu médico te indique un cambio.
- Asignación
- No informado
- Enmascaramiento
- No informado
Incarcerated adults
Adults who are incarcerated in the United States
Other: Survey
Survey OTHER
Tablet based survey
Qué evalúan los investigadores
Estas medidas indican qué se estudia. No prueban que un tratamiento funcione.
Medidas principales
Views on surrogates
Plazo: end of study
Incarcerated persons preferences for surrogate decision-makers if they become unable to make their own medical decisions.
Views on PPP
Plazo: end of study
Proportion of incarcerated persons who endorse the use of a PPP for medical decision-making for incarcerated persons who become unable to make their own medical decisions.
Revisa las tablas completas y sus limitaciones en el registro oficial.
Abrir resultados oficiales ↗Centros de investigación (1)
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1 centros
National Institutes of Health Clinical CenterBethesda, Maryland, United StatesReclutando
Equipo y fechas
- Patrocinador principal
- National Institutes of Health Clinical Center (CC)
- Inicio del estudio
- 15 nov 2026 Estimado
- Finalización primaria
- 29 dic 2026 Estimado
- Finalización del estudio
- 28 feb 2027 Estimado
- Primera publicación
- 7 ago 2026 Real
- Última actualización
- 10 nov 2026 Real
Contactos oficiales del estudio
Título oficial del estudio
Survey to Determine Incarcerated Persons Views on Surrogate Decision-Making
Consulta a Wellness Clinical Research
Tu mensaje va a WCR, incluso si otra organización realiza este estudio. WCR puede orientarte, pero podría no realizar este estudio, tener acceso a su equipo ni poder inscribirte.
Fuente: API v2 de ClinicalTrials.gov. Patrocinadores e investigadores envían la información. La NLM no aprueba la seguridad ni la ciencia de todos los estudios registrados. Aviso del registro.
Consultado: 11 nov 2026 · Última actualización del registro: 10 nov 2026