Bring your usual doctor into the conversation

Bring something specific

A conversation is easier when your clinician can see the study you are considering. Bring its name, a reliable link and the research team’s contact details. Ask whether the team can provide a plain-language summary or the consent information you are allowed to share.

Try opening with what you need: ‘I am exploring this study, and I would like help understanding how it fits with my current care.’ That gives the conversation a practical focus without assuming the answer should be yes or no.

Clarify responsibilities

If you join a study, make sure you understand the relationship between study visits and your regular healthcare. Ask who handles routine prescriptions, new symptoms, outside test results and questions between visits. Let both teams know when a new medication or health event needs to be discussed.

• Which parts of my usual care should continue?
• What study information would help you advise me?
• How will the research team and your office share relevant records?
• Who should I contact first about a new concern?
• What would follow-up look like after participation ends?

Leave with an action, not just an impression

At the end of the conversation, write down the one or two steps that come next. For example, you may need a study summary, a coordinator call or a specific record. If you heard conflicting instructions, ask the clinicians involved to resolve them rather than choosing one yourself.

Do not stop or change prescribed treatment to explore a trial without direction from the professionals responsible for your care. Our question builder and comparison tool help organize a conversation; they cannot decide whether an investigational approach is appropriate for you. A clear question list is useful even if you ultimately choose not to participate.